What can I eat?

I have always been somewhat of a fussy eater. My nana would work around it in sneaky ways. For example, I do not like onions. She would chop onion up so small and thin that I wouldn’t see it in mince or the stew she made. She would tell me that she made mince/stew especially for me, without any onions. As I grew older, I realised what she was doing, but I still ate the food that was “made with no onions”. To this day I can only have onions if they are so finely cut and hidden in my food.

I was always really fussy with meat. I would only eat it cooked in a certain way but did not like it if it was different. Looking back, I must have annoyed anybody who had to prepare food for me. About three years ago, I went to a festival and did not want to eat any of the meat options. I was worried that it would not be cooked properly and I would be ill. The idea of being ill in a tent, in the middle of a field with no toilet facilities other that portaloos (portable toilets) really scared me. It would be a horrible experience. In fact, since then, a friend has told me of an experience at a festival where they got food poisoning from eating pizza at a festival. They can confirm it is a horrible experience! So while I was at the festival I ate a vegetarian diet. This continued to a degree once I got home. I cut out all red meat and poultry. I did not see this as an issue, I didn’t miss the meat and I had been fussy with it anyway. However, I do like tuna and I like mackerel so I decided I would continue to eat fish. I did decide to eat it less often though. There’s a running joke amongst some of my friends that I am technically pescatarian (as I eat fish) but really I am just a bad vegetarian as I only eat tuna and occasionally mackerel.

As you can tell from above my diet is largely plant based. I do still eat tuna and mackerel. I think this is important as they will provide me with omega 3, which is good for the brain and joints. I still do not miss red meat or poultry. My family still continue to eat meat. I was content with my own diet choices.

When my back pain started (which was what started the investigation as to what was ‘wrong’ with me), I started to notice some irregularities with my digestive system. As time has went on, I’m noticing more. The pain and cramping that I get in my stomach, the bloating. I am often full of gas. It hurts. A doctor has told me that it is “just a bit of stress”. To be fair it could be due to stress, it could be down to my medication and the medication changes that are happening through the process of finding what works for me, it could be as a result of my anxiety or fibromyalgia or it could be something totally unrelated.

I have been keeping an eye on things lately, and I’m trying to see if there is any kind of pattern to the problems. This is difficult as I keep forgetting to write down some of the information. I have been thinking about different things – Should I be eating or avoiding certain foods and drinks as I have fibromyalgia? Could I be allergic to, or have an intolerance to, particular foods or drinks? Am I eating all the wrong things for my illness? Is there anything I can do through food and drink that could help my pain, my anxiety, my fatigue?

In my search for answers I have thought of a few things.

  1. The anti inflammatory diet. There is a lot of information online about certain foods and nutrients that are good for inflammation. The current understanding of fibromyalgia is that it does not cause inflammation to the joints. However, I had recurring blood tests that showed unmarked markers showing inflammation. Now that is not to say that it is my joints that are inflamed, it just means that there is some inflammation present in my body. It worries me sometimes that I don’t know why I have markers indicating inflammation but it could be down to so many reasons. Could eating an anti inflammatory diet help this? I guess it could.
  2. An elimination diet. An elimination diet takes a long time. It is when you take something out of your diet and later reintroduce it and note any reactions that you and your body has. I like this idea in theory. I do not think it will work for me at this point in time. I feel it will require more willpower and concentration than I can give to it.
  3. Go to a nutritionist. Another thing that could help is possibly going to a nutritionist. They will have the expertise and knowledge to hopefully make suggestions or a plan for me highlighting important nutrients and vitamins and the best food to eat to get them.
  4. Get a intolerance/allergy test. This one links to going to a nutritionist, although there are ways to get tested without having to go to a nutritionist. There are home tests that can be purchased and you send it to a lab for testing. I believe it is samples of your hair that you send away to the labs.
  5. Other testing. This scares me but it is another possibility. There might not be anything, or very little, that can be done differently regarding my diet. I may need to get further testing to get things ruled out or found.

I am going to do some more research into all the options above. I may even come up with more options to look into. I am definitely going to discuss it with my doctor too. Doing research and finding out options is good to do, but it is important to discuss them with doctors and get medical advice first! I do not know why I seem to be having more digestive problems than what I did but it is something I would like to try and help my body with. I have zero answers to any of the questions that I am constantly fretting over. However, I am on a journey. I am on a journey of getting to know my body better. Getting to know my symptoms better. Learning triggers and trigger points. Learning to listen to my body and find when it is OK to push it a wee bit and when to stop and rest. On top of that, learning more about fibromyalgia and anxiety and finding things that help. There are going to be a lot of times I’m sure I am going to be very frustrated when things don’t work but I still need to try. I need to try and find things that will help me have a good quality of life and to have, at least some, control over my symptoms.

Tough Week…

This week has been a tough week. I don’t even mind calling it a tough week, it has been difficult! I don’t think any particular thing has made it hard, it just has been. The pain has been close to unmanageable at times. I have been physically sick. My digestive system is clearly having some issues, and my stomach feels like it is constantly churning. I have been overly anxious. The fatigue has been horrible, and yet it is difficult to sleep. On top of all that I have been unable to do anything without ending up in tears. Just one of these ‘sensations’ can be difficult to cope with but put them all together and it just feels like too much.

This week I have been feeling like a failure. I have failed to get out of beds. I have failed in being a family member. I have failed in being a friend. I have found it difficult to cope.

In saying all that I have tried my best. I have tried to help my sister, by trying to run a few errands for her while she was at work to help her get ready for her holiday. I have tried to go to a yoga/pilates class to see if that would help. I tried by making sure I went to my appointment with the pain relief nurse. I tried to have a family day out with my nan and uncle. I tried to go over to my friends house. It all just ended in tears.

I don’t know why I am having a particular hard time of it this week but I am ready for this new week. A new week is coming and I am hoping for it to be better. I am hoping to be able to see my friends. I am hoping to be able to spend more time with my family. I am hoping to be able to continue to try working on myself both physically and mentally. I want my body and well-being to feel better, and to be better. As ridiculous as it sounds, I want to cry less this week. I don’t know what this week will bring but I am optimistic that it will be better.

“I’ve become so numb…”

Hearing reports on Thursday 20th about Chester Bennington’s death by suicide at the age of 41 shocked and upset me.

The date of his death looks to be significant as it is the date that his friend Chris Cornell’s (who died by suicide himself 2 months ago) birthday. Birthdays, anniversaries, holidays can be very difficult for people. That date can magnify that your loved one is no longer with here, and their loss can be really felt. Losing a loved one can be a trigger for mental health issues. The overwhelming variety of emotions that attack you, the grief and realisation that loved one is not with us anymore are all hard to deal with. This can lead to feelings of self harm or suicidal thoughts/ attempts.

It is a tragedy when any loss of life is due to suicide. There seems to be something more terrifying about it when it is somebody you admire, you look up to. It is especially sad when that person and their art helps you through dark times and feelings in your own life.

Death by suicide always raises a lot of questions, with people wondering how he could do it and think about how he “had it all”, they think “what about his … [children, wife, family, friends, band, fans]?”, “why did this happen?” The hard thing is, there will be no answers for the ones searching for them. Even if their is a note or some kind of message nobody is going to really have any answers.

Linkin Park, and their music are often said to have ‘saved lives’. Their powerful music and lyrics have impacted many people’s lives.The music reminded people that they are not alone in their battles with their demons. It provides a safe outlet to scream out frustrations, emotions, repressed feelings. Lyrics of songs and music can be so important. Lyrics can give feelings and experiences words, especially when you cannot put words to these yourself. Pain and hope were often themes through Linkin Park’s music. That’s important to people. There are Linkin Park songs that resonate with me. Linkin Park music is part of my own journey and I, like all fans, can feel this loss of a man whose words and emotions through music impacted on life. The title I’ve picked is from “Numb” which is a song that has helped me through some times. The phrases “…all I want to do // is be more like me and be less like you” and “every step that I take is another mistake to you” felt like they were describing me. I remember listening to “Numb” and thinking that this song was exactly like me and my life. It had a huge impact on me. I just don’t have the right words to describe just how much they did.

Tributes can be found all over for Chester Bennington. I really hope that his family can take some comfort from the fact that he has helped so many people through their own mental health journeys and that his music and songs will continue to be there through tough times. I hope Chester is at peace now, I hope he knows the impact he has had on so many lives. I am sorry that he didn’t have help at a time that he was so vulnerable.

For everybody grieving the passing of Chester Bennington. For everybody grieving the passing of a loved one (whether it was suicide or not). For everybody suffering from depression, anxiety or any other mental health condition, chronic illness, disability (invisible and visible). For everybody with thoughts of self harm or suicide. There are a few things I want to say to you:

  • It is ok to feel. It is ok to have many different emotions going on. It is ok to not know how you feel, you can’t give it a ‘label’ you just feel..
  • You are not alone. Other people may not know exactly how you feel, or what you are experiencing, but people can relate.
  • There are people out there who can help. There are people out there who want to help you! It is ok to reach out for help. It is not being weak asking for help. It is easy to feel that the whole world is against you, but it’s not. There will be help available somewhere.
  • Be kind to one another. You don’t know the battles that some people are facing. It is not always apparent that somebody is struggling.
  • Above all know that you matter! Your life, your story, your journey… You!! It all matters. YOU matter!!

If you, or anybody you know, are requiring help and support then there are multiple companies you can call, or get in contact with.

You can call the Samaritans any time, for free from the UK on 116 123.

For any readers not from the UK, the To Write Love on her Arms website has quite a useful list under their “Find Help” Section. Do check it out, quite a lot of places are covered. https://twloha.com/find-help/local-resources/