Today is fibromyalgia awareness day. I’m posting a lot later than what I wanted to do today but I have had a busy day. I went to see an amazing wee play called Invisible today with my dad. It is written by Charlie Marx. It pretty much hits the nail on the head on what life with fibromyalgia is like. I felt quite emotional after watching it, it was so relatable. This story is so close to my own. It was educational, inspiring and hopeful. It made me feel hope. A feeling that I have been lacking a lot recently. I left the hall feeling valid, I felt that I was not a lone. I felt that I although I do not know what my future holds, it is worth finding out what it holds. I was reminded of the joy that life can bring and felt hope for my future. That changes could happen… For the better!
Fibromyalgia is common, and yet it is surprising how many people have never heard of it. I knew very little about it before I was diagnosed. When I say I knew very little about it, what I really mean is I knew a person who had it and I knew it caused pain. That was it! That was all I knew.
As you can see, fibromyalgia is a lot more than just pain. This is something that causes me a lot of health related anxiety. There are so many symptoms and effects. My fear is that I could have something else wrong with me and a health professional could just attribute it to the fact that I have fibromyalgia and not receive, or be able to manage it properly. I think that I have finally found a GP who listens to me and takes my condition seriously, but even he sometimes listens to what I’m saying and relates it to me having fibromyalgia instantly. I try to keep track of any new symptom, or any changes of symptoms. If you have new symptoms, you should tell a medical profession and get it checked!
Fibromyalgia symptoms can be anything from a mere irritation to debilitating. The severity of symptoms can vary from person to person. They can vary from day to day, hour to hour.
I think it is particularly important to remember that fibromyalgia does not discriminate by age! I am only 25, I have been having symptoms for years. I was a teenager when I started showing symptoms. In fact, there are times in childhood, that I remember having multiple appointments due to having ‘unexplained’ pain. I often wonder if this was the start of my troubles.
Despite fibromyalgia awareness day now coming to a close, it is important to continue to spread awareness.
Be kind to yourself, and other people. You don’t know what struggles people are going through. People are all just trying to feel their way through life!