If you have a chronic health condition or are being tested for one chances are you have umpteen different appointments. Sometimes you have so many that it’s difficult to know who you are seeing, when and what for. Below are a few tips that that could hopefully help.
Make a note of the time, date and location somewhere that you regularly look
If you are attending different appointments and having various tests and/or check ups then it is important to try and keep on top of them. It is important as it means that you are up to date and have some kind of idea of what is happening with your body. Having any sort of idea of what is happening with your body can feel rare when you have a chronic condition, especially if there is little known about it. Also, often if you miss an appointment you can get removed from waiting lists which means you need to go through the stress of getting referred again to go back on the waiting list.
If you have multiple appointments or even if you can be a bit forgetful or get things confused it is good to have your appointment written out somewhere as a reminder. I recommend having a reminder somewhere that you see a lot. I have my appointments on the calendar and saved in my phone calendar. I check my phone calendar on a daily basis. I find writing it on the calendar helpful as the whole household know about my appointment so someone is likely to mention it too.
Have a plan on how to get there
I struggle a lot with making plans for journeys. I have no real perception of time of distances. I have help with my appointments. My sister accompanies me to a lot of appointments. If she can not come with me she drops me off. Other family members and my best friend have done the same for me. If I have to go myself, I always ask for help on deciding when I should leave the house, letting them estimate distances and journey times. I do that no matter how I am travelling to the appointment. It doesn’t matter if I am going to be walking, driving, getting a train or getting a bus, I am asking somebody else to help me make some kind of arrangement to get to the appointment.
Have somebody with you
If it is possible it can be useful having a person with you to support you at your appointment. It means that somebody is there to witness what is being said which is useful if you are likely to forget or if you have fear surrounding that appointment. Some places will help try and arrange someone to come in with you if you have to go yourself eg. If you tell my doctors surgery when you book in that you need somebody in your appointment to support you they will arrange for a staff member to come in to your appointment with you.
As I have already said above I have been accompanied to appointments by a few different family and friends.
Make a list
It is my experience that when you attend an appointment so much is spoken about that it is easy to not say everything you wanted to say. An easy way to fix this is to write a list and then you have a physical reminder with you of topics you want to bring up. When I have a doctors appointment my sister sits with me and will write out a list with me with everything I want to tell the doctor. This list will have everything from symptoms, reactions to medication, when appointments with consultants are scheduled for listed. In fact, she has titled a list “Sarah’s Issues” that she wrote out for me to take to a doctors appointment. I have found myself at appointments and just handing over the list for the medical professional to read through straight away. It gives me more peace of mind knowing that I am telling the doctor everything I wanted to tell him.
Have important information written down
If you are in an appointment yourself it can be useful to get the person to write down important information or instructions that you should remember down. It especially helps when you are attending an appointment that you are given a lot of information.
Tell people about it or write it down
It is useful to write down a short summary of what happened at your appointment. I’m not saying write a fully essay on it or anything! Just a short summary, even if it’s just a short sentence. It makes it easier when discussing treatments with other medical teams or if you are applying for benefits.
Likewise, I also do not mean to tell everybody about your medical business. Tell your partner, friend, anybody of your choosing how you got on. It is good for the person who cares about you to know how you are doing. Also it is nice knowing that you are not alone through it all.
For me, I have a tendency to overshare. However, it is usually with people that I trust and I want to know how my health is and how it is affecting me (I only use the word ‘usually’ here as I do make this blog quite personal so could possibly overshare). Having loved ones know about my health makes me feel less alone and it makes me feel like somebody cares (which is important, especially with an invisible condition). Also, I know that if something serious was to happen to me or I had to be hospitalised somebody would be able to give a rough account of what has been happening health wise in my life. This is something I worry about a lot and it might not be the cheeriest thought but it puts my mind at ease knowing that somebody else knows.
This short list is just a few things that I find helpful regarding appointments, and I’m sure there’s many more tips out there. Feel free to leave a comment or any tips that you might have.